The Marfan Association UK was founded
Little was known about Marfan syndrome and its effects on patients
and family members at that time.
Our goal was to increase awareness amongst
the medical profession, thus saving lives through early diagnosis, whilst providing support for patients, their
families and medical professionals around the world.
Our three main objectives are
Support, Education and Research.
In order to achieve the best for our members we work on a national
basis while working closely with colleagues around the world.
We support those with Marfan Syndrome and their families…….We
are aware that the unaffected family members may also need help to “come to terms with MFS”.
Marfan Support Network is available.
We educate by distributing updated Marfan text to lay and professional sectors,
holding and participating in School and Hospital meetings around the country.
is vital - we believe this is achieved by spreading information widely.
List is available covering the many aspects of MFS.
We research by undertaking, sponsoring, and participating in, national research
gene has been discovered.
Our Mission Statement
To improve and prolong
the lives of people with Marfan syndrome.
Our Red Heart Logo
The M of Marfan is represented
by the red heart logo which contains breaks that symbolise aortic dissection.
"Marf" The Giraffe
chosen because the giraffe is so tall and appealing and may suffer similar medical problems.
"Support for Today with Tomorrow in Mind"
Is to show
that although we implement "tactical" solutions for patients now, we shall never lose sight of the "strategic" goals that
will benefit future generations.
is to see automatic screening of patients and family members, followed
by more preventive comprehensive patient care and treatment and an improved understanding of Marfan syndrome and its impact
on daily living - at home - at school - at work and at play.
Please join the Marfan Association UK today.
YOU NEED US AND WE NEED YOU!!