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Publications List

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            1.   Marfan Emergency Card         - 2 Free to members }      Annual Subscription is 15 per year

            1a. Marfan “In Touch” Magazine - 3 Free to members }       due 1st Feb. annually    (22 overseas)

Basic Pack - 10  (incl postage & packing)

2. Fact Sheet on Marfan Syndrome 2008

3. A4 Large Marfan Fact Book on MFS - 2002

4. Pamphlet for the Ophthalmic Profession - 2008

5. Pamphlet for the Chiropody Profession - 2003

6. Pamphlet for the Dental Profession - 2002

6a.Pamphlet – Musculoskeletal Problems - 2002

6b.Pamphlet- Psychosocial Aspects - 2002

6c.Pamphlet for ENT Surgeons - 2002

A4 Clinical Guide is available for doctors – 2002

Further Reading - 3 each item

7.Emergency Diag & Treat of Aortic Dissection – 1998

8.  Booklet - Before & After Birth - 1998

9.  Booklet for Teenagers - 2005

10. Booklet–A Very Special Mouse -for children 1990

11. Booklet for Teachers - 1993

12a Booklet – Gospel Poems - Relaxation with Jesus

12b Booklet  - Gospel Poems - A Moment with Jesus

           Set of Pamphlets - 1.00

13. MARFAN VIDEO 2000 - 15 per copy – 2hrs. 35 mins.

Scoliosis Management; Eye Problems; Aortic Surgery; Research Update; the Teen`Years; the Marfan Association UK

 13a. MARFAN VIDEO 2003 - 15 per copy – 2hrs. 47 mins.

International Research Update; Ear, Nose and Throat; Orthotics; European Marfan Study Findings

13b. MARFAN INFO TAPE FOR THE VISUALLY IMPAIRED - 4 donation

13c. WAYNE’S RECIPE BOOK – “A Zest for Life” - 4 per copy

Information Leaflets - Min. of 50p per item helps us to re-print - Thank you

14. Care of Symptomatic Marfan Joints - 2002               38. Impact on the Whole Family - 2004

15. Role of Nutrition in Irritable Bowel Synd – 2001      39. Management of Eye Problems – 2004

16. Pain Management - 2001                                            40. Inherited Ophthalmic Disorders - 2006

17. International  Research Update – 2002                     41. Orthopaedic Aspects of MFS - 2005

18. Genetic Testing in Marfan Syndrome – 2002           42. The Alexander Technique - 2004

19. The Use of Hormone Treatment - 1997                     43. Fact Sheet - Large Print

20. Dental Health for Heart Patients (B.H.F)                 44. Infantile & Neonatal Marfan Syndrome 1995

21. Living With Marfan Syndrome – 2004                      45. Marfan Research Update - 2004

22. Pregnancy in Marfan Patients - 1996                        46. Obstructive Sleep Hypopnea - 1995

23. Genetics & Insurance Brief Survey Result 1997     47. New Hope for Marfan Lit Review - 2006

24. Addressing Special Needs of Siblings - 1997            48. Health Supervision - Birth to 21 yrs – 1999

25. Simon’s Poem – teens view, living with MFS 1985            49. Genetics and Insurance - 2001

26. Advice for the Older Marfan Patient                         50. Practical Paediatrics in MFS 2002

27. Revised Diagnostic Criteria (Ghent) - 1996              51. General Medical Research Report 2002

28. Marfan syndrome and the Eye - 2004                        52. ENT, Bone & Joint, & Dental Aspects 2002

29. Research Developments – 2005                                 53. Info Day Workshop – Growing Older 2002

30. Advice Regarding Feet & Footwear – 1996               54. Info Day Workshop– Marfan and the Mind 2002

31. Physiotherapy for Joint Hypermobility – 2004           55. Info Day Workshop Growing with MFS 2002

32. Article: Midwives’ Journal & Reply-1996                 56. Joint Hypermobility – patient survey 2003

33. Sports Guidelines – 1993                                             57. Marfan and Pilates – 2003

34. FBN1 Mutation Screening – 2005                              58. Orthotic Management of the Ankle/Foot 2003

35. Incidence of Osteopenia in MFS – 1995                    59. Losartan – “A Whole Lot of Optimism” - 2005

36. Joint & Skin Manifestations Prevalent- 1995              60. Ageing and Marfan Syndrome – 2002

37. MFS & Overlapping Conditions – 2002                    61. Joint Hypermobility Syndrome (pain mgmt) - 2003

 

Copyright 2007
Marfan Association UK is a registered Charity No. 802727
Head Office at Rochester House, 5 Aldershot Road, Fleet, Hants, GU51 3NG
Established 1984